The Marfan Trust
- Supports those with Marfan syndrome and their families -
- Provides educational information to raise awareness of Marfan syndrome -
- Undertakes medical research to enable better treatment for patients -

Diagnosing Marfan Syndrome

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C/O 24 Oakfield Lane, Keston, Kent, BR2 6BY

As we edge into 2026, we have stopped to gather the moments, milestones, and memories of an eventful 2025 into this news-filled newsletter. Armed with a warm brew, you can settle down to read our conference titbits, research advances, helpline trends, and more.

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Events

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Parents' Corner

Join the conversation
20 Jan 2026 7:00pm

News

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Talia's Story

14 Jan 2026

Wayne's Story

9 Jan 2026

Autumn/Winter Newsletter - Marfan Matters!

24 Dec 2025

Gene Editing, New Therapies and Marfan Syndrome

9 Dec 2025

Resources

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Diagnosis & Treatment

14 Aug 2025

Chronic Fatigue

24 Nov 2024

Dressing Tall

11 Sep 2024

Marfan Syndrome in Children

10 Jul 2022
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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