Information Day - 3rd Oct 2020 - BOOK TICKETS NOW

ON: Saturday, 3 October 2020, 09.15 – 16.20
Please join us at our First Virtual Marfan Syndrome Information Day. All you need to take part, is a smartphone, tablet, or PC, as well as an internet connection. Details as follows:
Early Bird Tickets - £10 (tickets available until end 25th September at 5pm only)
Standard Tickets - £15 (thereafter)
If you are interested, please book your tickets by clicking HERE. If you have any issues or concerns, please email us at If you don’t have access to email, then please call us at +44 (0)20 7594 1605
09:15 - 09:30
Maggie Smith
09:30 – 09:50
Welcome/Amalgamation of Marfan Trust and Marfan Association. Dispensing house rules such as muting.
Michael Heath, Chair, Marfan Trust
09:50 – 10:50
What’s New in Aortic and Mitral Valve Surgery?
Professor John Pepper, Royal Brompton Hospital
10:50 – 11:20
AIMS Trial Results (Irbesartan in Marfan Syndrome). Is it better, and how do we obtain it?
Dr Graham Stuart, Children’s Hospital, Bristol
11:40 – 12:10
Dislocated Lenses:
Causes and Management: Update
Mr Aman Chandra, Consultant Ophthalmologist
12:10 – 12:40
Sonalee Laboratory Research Programme (Ectopia Lentis, Familial Thoracic Aortic Aneurysms)
Dr José Aragon-Martin, Research Director of Sonalee Laboratory – Marfan Trust
12:40 - 12:55
Fundraising Initiative: Sonalee Laboratory Launch Campaign
Gurpreet Madan, Fundraiser, Marfan Trust
13:45 – 14:15
Psychosocial Aspects of Marfan Syndrome
Dr Dieter Benninghoven, Mühlenbergklinik-Holsteinische Schweiz
14:15 – 14:45
Navigating the Transition from Paediatric to Adult Marfan Clinic
Professor Christoph Nienaber, Royal Brompton Hospital
15:00 – 15:30
Pectus Chest Deformities: New Treatment
Mr Ian Hunt, St George’s Hospital, London
15:30 – 15:55
Pain Management in Marfan Syndrome
Dr Natasha Anno-Barnieh
16:00 – 16:10
Presentation of Daniel Finkletaub Student Prize
Mrs Carole Finkletaub
16:10  - 16:20
Closing Remarks
Michael Heath, Chair, Marfan Trust
Book Now to avoid disappointment and to take advantage of our Early Bird Offer (Valid till 25th Sept 2020 at 5pm)
Information Day - 3rd Oct 2020 - BOOK TICKETS NOW
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