Keep up to date with the work of the Marfan Trust charity

May 1, 2019

Helpline Summary

By Annette Ribeiro, Helpline Adminstrator. In the past 12 months the helpline has assisted a total of 121 people. Of these, 90 were received by email, and 31 by telephone.  Advice was given to all, and for 42 enquirers, specific advice was provided…
May 1, 2019

Sonalee Laboratory Update

Thanks to the tremendous generosity of our sponsors, so far we have been able to upgrade the following equipment, attend one of the ASHG Conferences and host a number of students to assist us in our vital research. PCR machine:…
May 1, 2019

Sonalee Laboratory Wish List 2019

The Sonalee Laboratory is sponsored by the Marfan Trust to undertake research in to Marfan syndrome. We urgently need your help to replace some of the laboratory equipment and buy new instruments to broaden our research. Our donation Wish List is below.  We…
May 1, 2019

Trustees Report Spring 2019

Although 2019 finds our Chairman Dr Michael Carr unfortunately indisposed, it is business as usual for the Trust and the Trustees.The Trustees’ recent decision to extend the purpose of the Charity to ‘Supporting Research into Inherited Aortic and Related Disorders’ reflects…
Feb 5, 2019

Research Director Appeal

Help the Marfan Trust launch its appeal for £300,000 with a bang this #MarfanAwarenessMonth. We need additional donations to be sure of maintaining the Sonalee Lab and keeping our Research Director, Dr. José Aragon Martin,…
Dec 19, 2018

..And the Bear is.....Polar

Thanks to all of you who came to the St. George's Hospital's Christmas Fair and particularly to those who visited us on the Marfan Trust stand. With your help, we raised over £600 which will all go to support research in to Marfan syndrome. Particularly popular was the "Name…