News

Keep up to date with the work of the Marfan Trust charity

Aug 26, 2020

Dr Child's Casebook: Heartfelt Connections - Dental Decay and Heart Disease

All roads lead to the heart, they say, including the route ferrying oral bacteria from the mouth. And, as the bacteria travel through the blood stream, trouble may be in store. Many medical studies have proven a link between oral hygiene and heart disease, specifically bacterial infections…
Aug 19, 2020

Dr Child's Casebook: Every Breath You Take

A multi-faceted condition, Marfan syndrome often presents different problems simultaneously. The question then becomes one of priority, as one parent learned after their eleven-year-old daughter developed both pectus and scoliosis. Already an asthmatic, the child found her lung…
Aug 12, 2020

Dr Child's Casebook: Ready Or Not?

It is every parent’s instinct to protect their child. By acquiring the simple basics of first aid, the parental power of protection will cover the serious - asthma attacks and choking - to the minor, cuts and bruises. But what if your child has Marfan syndrome with its attendant…
Aug 6, 2020

The Long and the Short of it is...

….clothing doesn’t always “have you covered” when limbs are long and slender. While the fantasy of haute couture envelopes the tall thin ideal, the reality of the high street often falls short of the lofty heights.  Meanwhile, shoes certainly don’t fit like a glove when the occupants are long…
Aug 5, 2020

Dr Child's Casebook: Through The Ages

Hindsight is 20/20, as the proverb goes. With a belated Marfan diagnosis in the family, everything that has gone on before can suddenly make sense. But everything that lies ahead can now feel dangerously imperilled, as Dr Child discovered in her recent interaction with a lady…
Jul 29, 2020

Dr Child's Casebook: Best Foot Forward

Our feet take us places, they are the platforms on which we navigate the word’s bumpy terrain. But in Marfan syndrome, feet lose their support, become lax and the arches can flatten. This culminates in metatarsalgia, inflammation of the ball of the foot, an important pressure…