News

Keep up to date with the work of the Marfan Trust charity

Apr 7, 2020

Help...We're Locked Out of our Facebook Page

Our recent move and staff changes have unfortunately locked us out of our Facebook account. Oops! New Facebook PageWe are seeking your help to restore our lost connection with supporters. To do so, please like our
Apr 1, 2020

Message from Marfan Trust Chairman Michael Heath

Hello All, In these times of uncertainty with the unfolding COVID-19 pandemic we are all having to adjust to what were unimaginable changes to everyone’s lifestyles. Consequently, Dr Anne Child, Dr José Aragon-Martin together with Moira Taylor and our brand new staff members Victoria Hilton…
Mar 26, 2020

Marfan Research Continues

We hope everybody is doing well, keeping healthy and fit under the current circumstances. We wanted to give you an update on what’s happening to our research into Marfan syndrome at the Sonalee Laboratory. Fortunately, when we saw that the early stages of the Covid-19 outbreak were taking us to a…
Mar 18, 2020

Marfan Trust Update

During this unsettled time, we wanted to reassure you that the Marfan Trust is working hard to operate the organisation as normal to continue to provide support and advice. Our vital research work will also continue. In line with Government guidelines, our office team is now working remotely. However,…
Mar 17, 2020

Marfan Trust Statement on COVID-19

As Coronavirus, COVID-19, continues its relentless march across the world and the UK, the Marfan Trust would like to provide some guidance to our community.  With the disparities and individual variabilities among those with the Syndrome, not everyone with Marfan sydrome is at equal risk. We therefore…
Nov 27, 2019

Marfan Association Merges with Marfan Trust

The Marfan Association has now sadly closed down. In collaboration with the Marfan Association trustees, we welcome Marfan Association supporters to transfer their support to the Marfan Trust. We are especially grateful to Marian Mason, Association Administrator, and the three new trustees appointed…