Blog

Keep up to date with the work of the Marfan Trust charity, find out all our News, Events and research here.

Going in to Labour with Marfan Syndrome

By Laura Smith   So you’re pregnant with Marfan syndrome, and you’re tackling all the challenges that brings, that’s even before you’ve tackled the labour! When I read around about being pregnant…

What to Expect When You’re Pregnant with Marfan Syndrome

By Laura Smith   Whether you knew you had Marfan Syndrome before you got pregnant or it’s something you’re just finding out, you may…

Lucy Atkinson - My Journey Through Blogging

Happy December Everyone! I'm not taking part in Blogmas this year as I'm not always able to sit at my computer typing for long periods due to my chronic health conditions. It wouldn't be possible to write a blog a day throughout the month so instead I'm just going to share some of my highlights. I've…

Harriet G - Got my 6 month update after back surgery!

So it’s actually been a really good week! On Monday I got a letter telling me I had been selected to be a Science Ambassador by my school and inviting me to a training day on the Thursday! I was really excited as I have a real passion for Science, especially Biology-I find the human body and how it…

Lucy Atkinson - Unexpected Concern

It's been two days since my last Cardiology appointment & I'm still thinking it over. I haven't discussed it with anyone, but it's been on my mind a lot. I was there for my regular check up and I was given the results of my last echo. The Doctor said it looked reassuring overall, but my aorta has…

Harriet G - I would not enjoy recovering in a strangers spare room!

It has been an interesting fortnight, not least because last week there were headlines saying the NHS were considering letting people recover in others spare rooms! I know it’s unlikely to happen to under 18’s, but I find it deeply concerning that it is even being considered. We all know the NHS is…