The Marfan Trust
- Supports those with Marfan syndrome and their families -
- Provides educational information to raise awareness of Marfan syndrome -
- Undertakes medical research to enable better treatment for patients -

Diagnosing Marfan Syndrome

Information Leaflets  Contact us   


C/O 24 Oakfield Lane, Keston, Kent, BR2 6BY

Rare and often unseen, Marfan syndrome is too often overlooked and even when diagnosed, vital needs remain unmet. Our nationwide survey has revealed the symptoms people feel most acutely, the gaps in healthcare, and the support that remains unfulfilled. Let's Act Now: See the Signs and Save a Life. Follow our posts, distribute our leaflets and put up our poster! 

Download our Awareness Material Today


Events

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A Webinar with Dietitian Chloe Hall

25 Feb 2026 7:00pm

News

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Anne Willmott-Speller

20 Jan 2026

Talia's Story

14 Jan 2026

Wayne's Story

9 Jan 2026

Gene Editing, New Therapies and Marfan Syndrome

9 Dec 2025

Resources

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Diagnosis & Treatment

14 Aug 2025

Chronic Fatigue

24 Nov 2024

Dressing Tall

11 Sep 2024

Marfan Syndrome in Children

10 Jul 2022
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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