The Marfan Trust
- Supports those with Marfan syndrome and their families -
- Provides educational information to raise awareness of Marfan syndrome -
- Undertakes medical research to enable better treatment for patients -

Diagnosing Marfan Syndrome

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C/O 24 Oakfield Lane, Keston, Kent, BR2 6BY

A storied career, a genetic breakthrough, and a moment of love at first sight. In July 2024, Dr Child discussed her career with Professor Jim Al-Khalili on The Life Scientific. Here is the link to listen afresh to their fascinating conversation during which Dr Child describes the discovery of the causative gene for Marfan syndrome.

Listen to Dr Child's Interview on The Life Scientific

Events

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Marfan and Loeys-Dietz Syndrome Online Clinic

12 Jun 2026 9:00am

News

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Growing Up with Marfan Syndrome: A Brother's Perspective

5 Jun 2026

Tal Golesworthy in Conversation

1 Jun 2026

Heatwaves and INR Levels

25 May 2026

Niccolo Paganini

11 May 2026

Resources

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Diagnosis and Management in Childhood

21 Apr 2026

Marfan Syndrome v Hypermobile Ehlers-Danlos Syndrome

15 Apr 2026

Diagnosis & Treatment

14 Aug 2025

Chronic Fatigue

3 Apr 2025
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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