A one-stop source of information, leaflets are an invaluable tool and today we are introducing Marfan’s ‘connective cousin’, Loeys-Dietz syndrome, into our pamphlet mix. A big thank you to Darran, Debbie and Georgie for giving a face to the condition.

Trust Guide to Loeys-Dietz Syndrome
PDF (2.77 MB)
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Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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