A rare genetic condition, Marfan syndrome is a lifelong health challenge. Early diagnosis saves lives by ensuring correct medical management of the syndrome’s various manifestations. Opportunities exist everywhere in everyday life to spot the symptoms. Download our pamphlet today and take it to your GP surgery, optician, pharmacy - anywhere and everywhere - to make the world Marfan Aware!
'Managing Marfan and Its Future' is the theme for our 2024 campaign. Throughout February we will be running articles, stories and videos on Managing Physical Activity, Height, Mental Health, Recovery from Surgery, Benefits, Heart Health, Eye Health and more with Marfan Syndrome.
Managing Marfan & Its Future: Downloadable Pamphlet
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at:
c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY.
Contact us at [email protected] or by phone on + 44 (0)333 011 5256