Marfan Syndrome Information Day

Please join us at our First Virtual Marfan Syndrome Information Day. All you need to take part, is a smartphone, tablet, or PC, as well as an internet connection. Details as follows:

TICKETS
Early Bird Tickets - £10 (tickets available until end 25th September, at 5pm, only)
Standard Tickets - £15 (thereafter)

REGISTER NOW
If you are interested, please book your tickets by clicking HERE. If you have any questions, please email us at [email protected]. If you don’t have access to email, then please call us at +44 (0)20 7594 1605.

CONFERENCE PROGRAMME

09:15 - 09:30
Registration
Maggie Smith
 
09:30 – 09:50
Welcome/Amalgamation of Marfan Trust and Marfan Association. House rules.
Michael Heath, Chair, Marfan Trust
 
09:50 – 10:50
What’s New in Aortic and Mitral Valve Surgery?
Professor John Pepper, Royal Brompton Hospital
 
10:50 – 11:20
AIMS Trial Results (Irbesartan in Marfan Syndrome). Is it better, and how do we obtain it?
Dr Graham Stuart, Children’s Hospital, Bristol
 
COFFEE BREAK

11:40 – 12:10
Dislocated Lenses:Causes and Management: Update
Mr Aman Chandra, Consultant Ophthalmologist
 
12:10 – 12:40
Sonalee Laboratory Research Programme (Ectopia Lentis, Familial Thoracic Aortic Aneurysms)
Dr José Aragon-Martin, Research Director of Sonalee Laboratory, Marfan Trust
 
12:40 - 12:55
Fundraising Initiative: Sonalee Laboratory Launch Campaign
Gurpreet Madan, Fundraiser, Marfan Trust

LUNCH
 
13:45 – 14:15
Psychosocial Aspects of Marfan Syndrome
Dr Dieter Benninghoven, Mühlenbergklinik-Holsteinische Schweiz
 
14:15 – 14:45
Navigating the Transition from Paediatric to Adult Marfan Clinic
Professor Christoph Nienaber, Royal Brompton Hospital
 
TEA BREAK
 
15:00 – 15:30
Pectus Chest Deformities: New Treatment
Mr Ian Hunt, St George’s Hospital, London
 
15:30 – 15:55
Pain Management in Marfan Syndrome
Dr Natasha Anno-Barnieh
 
TEA BREAK
 
16:00 – 16:10
Presentation of Daniel Finkletaub Student Prize
Mrs Carole Finkletaub
 
16:10  - 16:20
Closing Remarks
Michael Heath, Chair, Marfan Trust 

Book Now to avoid disappointment and to take advantage of our Early Bird Offer (Valid till 25th Sept 2020 at 5pm)