A rare condition, Marfan syndrome can leave you feeling isolated. Being the parent of a child with Marfan can sometimes feel like a solitary journey, especially when your child is the first member of the family to have the condition. Our Parent webinar is a chance to meet similarly situated parents and discuss common concerns in a supportive environment. Join us!
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at:
c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY.
Contact us at [email protected] or by phone on + 44 (0)333 011 5256