This year's Marfan Information Day features medical experts on every aspect of syndrome with an emphasis on pain and advocacy. Speakers will present for 20 minutes and take questions for a further ten. Whilst this is a virtual conference, there will be a chance to mix and mingle during our themed coffee breaks!
Rest assured, this conference will be recorded for anyone who cannot attend or who wishes to refresh their memory.
09:15 - 09:30 Registration
09:30 - 09:45 Welcome, from Dr Anne Child MD FRCP
09:45 - 10:15 101 Genomes Foundation, Romain Alderweireldt, Founder
10:15 - 10:45 The Eye in Marfan Syndrome, Mr Aman Chandra, Consultant Ophthalmologist BSc (Hons) MBBS FRCOphth PhD MFSTEd FRCSEd
10:45 - 11:15 Pain and Marfan Syndrome, Dr Helen Cohen, Consultant in Rheumatology and Chronic Pain, Royal National Orthopaedic Hospital, Stanmore
11:15 - 11:35 COFFEE BREAK
11:35 - 12:05 Dural Ectasia TBC
12:05 - 12:35 Speaker TBC
12:35 - 13:20 LUNCH
13:20 - 13:50 The Heart in Marfan Syndrome, Dr Yaso Emmanuel, Consultant Cardiologist, Guys' and St Thomas' Hospital NHS Foundation Trust
13:50 - 14:50 Research at the Marfan Trust (13:50 - 14:10: Dr Jose Aragon-Martin BSc PhD; 14:10 - 14:30: The Eye & Marfan Syndrome, Navatheethan Adityaraj; 14:30 - 14:50 CT Scans and Aortic Measurements Mehar Bijral)
14:50 - 15:10 Presentation of Daniel Finkletaub Prize, Elaine Finkletaub / Presentation of Michael Carr Award / Presentation of Sir Sebastian Roberts Award
15:10 - 15:25 TEA BREAK
15:25 - 15:55 Advocacy TBD
15:40 - 16:10 Living with a connective tissue condition, Dr Anne Child MD FRCP
16:10 - 16:20 Closing Remarks
