This year's Marfan Information Day features expert speakers on every aspect of the syndrome including chronic pain. And it doesn't stop here. In keeping with our newly designed MFS/LDS logo, Dr Christiane Pees from Vienna will be discussing Loeys-Dietz syndrome.
Speakers will present for 20 minutes and take questions for a further ten. Whilst this is a virtual conference, there will still be a chance to mix and mingle with each other during our themed coffee breaks! As always, the conference will be recorded for anyone who cannot attend or who wishes to refresh their memory.
09:15 - 09:30 Registration
09:30 - 09:45 Welcome, from Dr Anne Child MD FRCP
09:45 - 10:15 101 Genomes Foundation, Romain Alderweireldt, Founder
10:15 - 10:45 The Eye in Marfan Syndrome, Mr Aman Chandra, Consultant Ophthalmologist BSc (Hons) MBBS FRCOphth PhD MFSTEd FRCSEd
10:45 - 11:15 Pain and Marfan Syndrome, Dr Helen Cohen, Consultant in Rheumatology and Chronic Pain, Royal National Orthopaedic Hospital, Stanmore
11:15 - 11:35 COFFEE BREAK
11:35 - 12:05 Loeys-Dietz Syndrome, Dr Christiane Pees, Consultant Paediatric Cardiologist, Medical University of Vienna
12:05 - 12:35 Paediatric Cardiology, Dr Nitha Naqvi, Consultant Paediatric Cardiologist, Royal Brompton Hospital
12:35 - 13:20 LUNCH
13:20 - 13:50 The Heart in Marfan Syndrome, Dr Yaso Emmanuel, Consultant Cardiologist, Guys' and St Thomas' Hospital NHS Foundation Trust
13:50 - 14:50 Research at the Marfan Trust (13:50 - 14:20: Dr Jose Aragon-Martin BSc PhD; 14:20 - 14:35: The Eye & Marfan Syndrome, Navaneethan Adityaraj; 14:35 - 14:50 CT Scans and Aortic Measurements Mehar Bijral)
14:50 - 15:10 Presentation of Daniel Finkletaub Prize, Elaine Finkletaub / Presentation of Michael Carr Award / Presentation of Sir Sebastian Roberts Award
15:10 - 15:25 TEA BREAK
15:25 - 15:55 Self-Advocacy with a connective tissue disorder, Gareth Owens, Chair of Aortic Dissection Awareness UK & Ireland & Think Aorta
15:55 - 16:10 Closing Remarks
