Our panel of regular advisors all have an interest and/or specialisation in Marfan syndrome and we call on them regularly to help us answer supporter questions and provide useful information. They all support and contribute to the work of the Marfan Trust. The advisors are:

Dr Anand Saggar
Clinical Genetics (Private), 119 Harley St, London W1G 9PF

Mr Aman Chandra
Consultant Ophthalmic Surgeon, Ophthalmology Department, BMI Southend Private Hospital  15-17 Fairfax Dr, Westcliff-on-Sea, Southend-on-Sea SS0 9AG

Professor Anita Simonds
Emeritus Professor of Respiratory & Sleep Medicine, Imperial College, 49 Prince Consort Rd, South Kensington, London SW7 2BH

Professor Anton Emmanuel
Professor in Neuro-Gastroenterology, University College Hospital, 235 Euston Rd, London NW1 2BU

Prof Bindy Sahota
ENT Surgeon Consultant, University Hospitals Derby and Burton NHS Trust, Uttoexter Road, Derby, DE22 3NE

Mr Conal Austin
Consultant Cardiothoracic Surgeon, Guy's and St Thomas' Hospital, Westminster Bridge Road, London SE1 7EH

Professor David Charteris    
Consultant Orthalmic Surgeon, Vitreo-Retinal Unit, Moorfield Eye Hospital, 162 City Road, London EC1V 2PD

Dr Deborah Morris- Rosendahl
Molecular Genetics, Royal Brompton and Harefield Aortic Centre London, Sydney Street, London SW3 6NP

Dr Elena Cervi
Paediatric Cardiologist, Great Ormond Street Hospital, Great Ormond Street, London, WC1N 3JH

Dr Fariboz Neirami
Pain Specialist, Kings’ College Hospital, Denmark Hill, London, SE5 9RS

Dr Fiona Walker
Cardiologist, Barts Heart Centre, West Smithfield, London EC1A 7BE

Dr Fleur van Dijk
Consultant Geneticist, Clinical Genetics (EDS/Marfan) North-West Thames Regional Genetics Unit, Northwick Park Hospital, Harrow, Middlesex

Dr Graham Stuart    
Congenital Heart Disease Centre, Bristol Royal Hospital for Children, Upper Maudlin Street, Bristol BS2 8BJ

Dr Hanadi Kazkaz    
Rheumatology Department, University College London Hospital, 250 Euston Road, London NW1 2PG

Dr Helen Cohen
Rheumatologist Consultant, Royal National Orthopaedic Hospital, Brockley Hill, Stanmore, HA7 4LP

Mr Ian Hunt
Thoracic Surgeon, Department of Thoracic Surgery, St George's Hospital, Blackshaw Road, London SW17 0QT

Dr Isma Rafiq
Consultant Cardiologist, Royal Brompton & Harefield Hospitals, Sydney Street, London SW3 6NP

Professor John Pepper    
Professor of Cardiac Research, Royal Brompton Hospital, Sydney Street, London SW3 6NP

Dr Juan Pablo Kaski    
Paediatric Cardiologist, Great Ormond Street Hospital for Children NHS Foundation Trust, Great Ormond Street, London WC1N 3JH

Ms Karen Sage    
The London Bridge Fertility, Gynaecology and Genetics Centre, 1 St Thomas Street, London SE1 9RY

Dr Lucy Hyde
Dental Consultant, C/O Marfan Trust, 24 Oakfield Lane, Keston, Kent, BR2 6BY

Professor Marjan Jahangiri    
Department of Cardiothoracic Surgery, St George's Hospital, Blackshaw Road, London SW17 0QT

Dr Matina Prapa 
Genetics, Royal Brompton Hospital, Sydney Street, London, SW6 6NP

Mr Marios Papadopoulos    
Academic Neurosurgery Unit, St George's Hospital, Blackshaw Road, London SW17 0QT

Mr Mohammed Noordeen    
Orthopaedic Surgery (Paeds), Brockley Hill, Stanmore, Middlesex, HA7 4LP and 45-51 Bolsover Street, London W1W 5AQ 

Dr Nitha Naqvi
Cardiologist (Paeds), Royal Brompton Hospital, Sydney St, London, SW6 6NP

Prof Christoph Nienaber
Professor of Cardiology, Royal Brompton Hospital, Sydney Street, London, SW6 6NP

Mr Robert Henderson
Consultant Paediatric Ophthalmic Surgeon at Great Ormond Street Hospital for Children, NHS Foundation Trust (Great Ormond Street, London WC1N 3JH) & Moorfields Eye Hospital (162 City Road, London EC1V 2PD)

Mr Ulrich Rosendahl    
Department of Surgery, Royal Brompton and Harefield Aortic Centre London, Sydney Street, London SW3 6NP

Dr Sabiha Gati
Sports Cardiology, Royal Brompton Hospital, Sydney Street, London, SW6 6NP

Mr Tahir Khan
Consultant Paediatric Orthopaedic Surgeon, Royal National Orthopaedic Hospital, Brockley Hill, Stanmore, Middlesex HA7 4LP / Bolsover Street, London W1W 5AQ

Dr Yaso Emmanuel 
Consultant Cardiologist, St Thomas' Hospital, Westminster Bridge Road, SE1 7EH

Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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