Marfan Information Day 2021
Revisit our Information Day!
A day devoted to discussion of all things Marfan syndrome, from matters of the heart, eyes, and skeleton, to advice on psychological support, pregnancy and more! Below are the individual recordings.
Chairman's Welcome
Michael Heath, Chair, Marfan Trust
Update on Aortic Surgery - options and risks
Professor Ulrich Rosendahl, Consultant Cardiac Surgeon, Royal Brompton Hospital
Care of Children’s Eyes
Mr Robert Henderson, Consultant Paediatric Ophthalmologist, Great Ormond Street Hospital and Moorfield's Eye Hospital
Pregnancy and Prenatal Genetic Diagnosis
Audrey Dearing, Genetic Counsellor, Guy's & St Thomas' Hospital Reproductive Services
Psychological Support for all Ages
Dr Zoe Berger, Consultant Clinical Psychologist, Psychological Services, Great Ormond Street
Sonalee Laboratory, Research Update
Dr José Aragon-Martin, Research Director of the Sonalee Laboratory
Summer Studentships in the Sonalee Laboratory:
Lauren Lau, Qasim Mansoor Ashraf and Husnaa Fathima Ali Azamathullah Khan
Update on PEARS Personalised External Aortic Root Support
Tal Golesworthy, Chartered Engineer, Inventor of the PEARS Procedure
COVID-19 Vaccination in Children
Dr Nitha Naqvi, Consultant Paediatric Cardiologist, Royal Brompton Hospital
Is a Slim Build a Protective Factor in the COVID-19 Pandemic?
Mohamed Abdelrazek and Thomas Whittaker, Medical Students of Cardiff University
Presentation of Daniel Finkletaub Prize
Carole Finkletaub
The Role of Desmosine in Aortic Aneurysm
Dr Anna Choy, Consultant Cardiologist & Clinical Senior Lecturer, Dundee University
Advances in Scoliosis Management for Children, Young Adults, and Older Patients
Mr Hilali Noordeen, Royal National Orthopaedic Hospital
Updating Marfan Trust Literature and Helpline Analysis
Dr Anne Child, Medical Director, Marfan Trust & Victoria Hilton, Marfan Trust
Fundraising Activities
Gurpreet Madan, Fundraising Manager, Marfan Trust
Closing Remarks
Michael Heath, Chair, Marfan Trust
