Micah’s spirit will surge through the streets of Paris to the Palace of Versailles as his mother and three friends run the Marathon in his memory on 13 April. Read their story and contribute to their campaign.

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by Natasha

My name is Natasha. My son, Micah, died suddenly and unexpectedly on July 23rd 2020. He was 19 years old, fit and healthy. He had no medical problems that I was aware of. 

It’s hard to put in words what Micah was like, to me as his mum he was a bright, chatty, kind, thoughtful, clever, active, friendly, lovely child who grew up to be an amazing young man with the world at his feet. It wasn’t until he died that I discovered so many other people felt the same way about him. I found out he was truly loved because of the amazing person he was inside and out. 

After he died, the love of his friends slowly became a comfort for me. I’ve come to care deeply for some of his friends because they are just as amazing as Micah was and I know they will always hold a special place for him in their hearts and will keep his memory alive and that for a mother who has lost her child is so so very important, both heartbreaking and heart-warming.

Micah was only 19 when he died. He was destined for university. While practising his cooking skills one evening in preparation for leaving home for the first time, he suffered a fatal dissection. He had undiagnosed Marfan syndrome.

Natasha has since run three marathons in his memory.


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Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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