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Vacancies
Webinars
A Story of Two Brothers
Appearances can be deceptive
28 Dec 2024
Research in the Sonalee Laboratory
24 Dec 2024
Thriving with Marfan Syndrome
Embracing Life Beyond the Diagnosis
24 Dec 2024
Dr Child's Casebook: A Different Perspective
19 Dec 2024
Members only
Save Your Stamps
16 Dec 2024
Dr Child's Casebook: Work Adaptations
8 Dec 2024
Members only
Lucy's Blog: Expect the Unexpected
29 Nov 2024
Darren's Story
25 Nov 2024
Dr Child's Casebook: So Many Symptoms
24 Nov 2024
Members only
Francesca's Story
Marfan and Milestones
15 Nov 2024
Friday Fact: Image is Everything
8 Nov 2024
Dr Child's Casebook: Sinus Relief
26 Oct 2024
Members only
Saturday Soundbite: Genetics v Genomics
19 Oct 2024
International Patient Symposium: 31 August
Thank You to Our Sponsors
15 Oct 2024
Second Sight
Daniel's Story
14 Oct 2024
World Mental Health Day
10 October 2024
10 Oct 2024
Saturday Soundbite: Stoptober
5 Oct 2024
A Guide to the Eye in Marfan Syndrome
Our new booklet is out today
30 Sep 2024
Lucy's Blog: Part 13
29 Sep 2024
European Society of Cardiology - New Guidelines
Paedia†ric Aortopa†hy & Marfan Syndrome
24 Sep 2024
Friday Fact: Z-Score
20 Sep 2024
Aortic Dissection Awareness Day
Hurtling back through the centuries to 1760 ...
19 Sep 2024
Study of CT Scans and Aortic Measurements
Aortic Dissection Awareness Week
18 Sep 2024
Aortic Valve
Aortic Dissection Awareness Week: 16 - 23 September 2024
17 Sep 2024
Aortic Dissection Awareness Week
16 - 23 September
16 Sep 2024
Friday Fact: William Harvey
13 Sep 2024
Friday Fact: Know Your Numbers
Blood Pressure Awareness Week
6 Sep 2024
Friday Fact - Advocating for your Child
30 Aug 2024
Dr Child's Casebook: Examination Time
29 Aug 2024
Members only
The Life Scientific
A rave review
27 Aug 2024
Friday Fact: Immunisation
23 Aug 2024
Running for Russell
by Michael
19 Aug 2024
Friday Fact: Costochondritis
16 Aug 2024
National Relaxation Day!
15 Aug 2024
Friday Fact: Hypermobility
Let's discuss joint hypermobility
9 Aug 2024
Research in the Sonalee Laboratory
An update from Dr Aragon-Martin
8 Aug 2024
Marfan Matters: Spring / Summer Edition 2024
8 Aug 2024
The Anatomy of the Aorta
8 Aug 2024
Lucy's Blog: Part 12
7 Aug 2024
Olly's Visit to the Sonalee Laboratory
Inspired by his Marfan syndrome to study biology ....
5 Aug 2024
Friday Fact: Arterial Tortuosity
What is it?
2 Aug 2024
Daniel's Story
Fundraising for the Marfan Trust
29 Jul 2024
Dr Child's Casebook: Aortic Regurgitation
28 Jul 2024
Members only
Friday Fact - Genetic Testing
26 Jul 2024
Friday Fact: DVLA Guidelines
19 Jul 2024
Dr Child's Casebook: Energy Deficit
Can fatigue be relieved?
18 Jul 2024
Members only
Lucy's Blog - Part 11
A new diagnosis and a new physio
15 Jul 2024
Dr Antoine Marfan
Bastille Day
14 Jul 2024
Friday Fact - POTS
12 Jul 2024
Friday Fact: Alcohol Awareness Week
5 Jul 2024
Tune in to Dr Child on The Life Scientific
Tuesday, 2 July at 9am on BBC Radio 4
1 Jul 2024
Friday Fact: Systemic Score
28 Jun 2024
World Pneumothorax Day 2024
24 Jun 2024
Friday Fact: Ghent Criteria
21 Jun 2024
Ashton's Story
He smiles through his chronic pain and loves to make people laugh
17 Jun 2024
Friday Fact: Marfanoid Habitus
14 Jun 2024
Dr Child's Casebook: In Anticipation
Predicting potential problems as the prospect of open surgery looms
10 Jun 2024
Members only
Friday Fact: Aortic Valve
What does it do?
7 Jun 2024
Dr Child's Casebook: Cold Comfort
2 Jun 2024
Members only
Friday Fact: Preparing for an Emergency
31 May 2024
Friday Fact: 20th Anniversary of PEARS!
24 May 2024
Dr Child's Casebook: Innate Advantage
Capitalising on the Marfan physique
21 May 2024
Members only
Friday Fact: Joint Pain in Marfan Syndrome
17 May 2024
Friday Fact: Kyphosis v. Scoliosis
What's the difference?
10 May 2024
Friday Fact: Pectus Problems
3 May 2024
Danny's Story
From dedicated smoker to avid runner!
2 May 2024
Dr Child's Casebook: The Science Behind a Smile
Accommodating a high-arched palate
30 Apr 2024
Members only
Friday Fact: PEARS Procedure
What is it?
26 Apr 2024
Wayne's Story
21 years ago
22 Apr 2024
Friday Fact: Sleep Apnoea
What is it?
19 Apr 2024
Karen's Story
A poignant run
15 Apr 2024
Friday Fact: Genotype v. Phenotype
What's the difference?
12 Apr 2024
Dr Child's Casebook: Supplemental Help
Strengthening a weakness
9 Apr 2024
Members only
Brooke's Story
Running in memory of a dear uncle
8 Apr 2024
Lucy's Blog: Part 10
The theme of cancellations & lost referrals has marked Lucy's hospital experience
7 Apr 2024
Friday Fact: Infective Endocarditis
Order your alert card today
5 Apr 2024
Friday Fact: Ectopia Lentis
What is it?
29 Mar 2024
Lucy's Blog - Part 10
Unexpected Finding
26 Mar 2024
James' Story
Fundraising in memory of a friend
25 Mar 2024
Friday Fact: Mitral Valve Regurgitation
What is it?
22 Mar 2024
Sarah's Story
A momentous Marfan Monday!
18 Mar 2024
Dr Child's Casebook: Incidental Finding
17 Mar 2024
Members only
Friday Factoid: Aortic Dissection
Signs and Symptoms
15 Mar 2024
Amiyah's Story
11 Mar 2024
Friday Factoid: Dural Ectasia
What is it?
8 Mar 2024
International Women's Day 2024
Celebrating Dr Anne Child
8 Mar 2024
Lucy's Blog - Part 9
Whether slow or fast, progress is progress
6 Mar 2024
Dr Child's Casebook: Fatigue & Marfan Syndrome
5 Mar 2024
Members only
Oliver's Story
Recently diagnosed and spreading the word!
4 Mar 2024
The Future for Marfan Syndrome
Marfan Awareness Month - Final Chapter
1 Mar 2024
Appearances Can Be Deceptive
by Ellie Musgrave
29 Feb 2024
Mr Ulrich Rosendahl
a new Patron of the Marfan Trust
27 Feb 2024
Micah's Story
Marfan Awareness Month
26 Feb 2024
Ellie's Story
Marfan Awareness Month
25 Feb 2024
Friday Factoid: Fluoroquinolone Alert
Marfan Awareness Month
22 Feb 2024
Managing Mental Health with Marfan Syndrome
by Anna Gould
21 Feb 2024
Lynsey's Story
Marfan Awareness Month
19 Feb 2024
Dr Child's Casebook: What Do You Do?
A health-induced change of jobs on the horizon
18 Feb 2024
Members only
Friday Factoid: ARBs v Beta-Blockers
What's the difference?
16 Feb 2024
Managing Height in Marfan Syndrome
How Tall is Too Tall?
15 Feb 2024
Zaira's Story
Connecting the dots ...
12 Feb 2024
Friday Factoid: CT Scan v MRI
What's the difference?
9 Feb 2024
Sarah's Story
Marfan (and Loeys-Dietz!) Awareness Month
8 Feb 2024
Managing the Benefits System with Marfan Syndrome
Marfan Awareness Month continues apace
5 Feb 2024
Friday Factoid: Congenital v Genetic
What's the difference?
2 Feb 2024
Friday Factoid: Heart Attack v. Aortic Dissection
What's the difference?
26 Jan 2024
Pectus Surgery Returns to Teeside NHS Trust
23 Jan 2024
Friday Factoid: Echo v. ECG
What's the difference?
19 Jan 2024
Dr Child's Casebook: Holistic Healing
18 Jan 2024
Members only
Dr Child's Casebook: Muscle Matter
New Year, New FREE Casebook
5 Jan 2024
Dr Child's Casebook: Thin Protection
15 Dec 2023
Members only
Research Update
A despatch from the genetic frontier
4 Dec 2023
Psychosocial Aspects of Marfan Syndrome on Families
Our questionnaire reaps new insights
4 Dec 2023
Gastrointestinal Symptoms in Marfan Syndrome
The correlation between functional GI disorders & MFS
4 Dec 2023
Dr Child's Casebook: Head Rush
Seeing stars when you stand to attention?
30 Nov 2023
Members only
Dr Child's Casebook: In Focus
Supplementing Sight
23 Nov 2023
Members only
Rebecca's Story
Embracing a magnificent milestone
20 Nov 2023
Marfan Information Day: Press Release
20 Nov 2023
Lucy's Blog: Part 8
Bittersweet Progress
6 Nov 2023
Dr Child's Casebook: Push Back
Staying upright
1 Nov 2023
Members only
Sara's Story
From the Rooftop of the World
30 Oct 2023
Dr Child's Casebook: The Science of Sleep
Suggested paths to the perfect night's sleep
19 Oct 2023
Members only
Carole Finkletaub
A warm-hearted woman who turned her private sorrow into a force for good
16 Oct 2023
Josie & Greg
How a daughter's diagnosis saved her father's life
11 Oct 2023
Dr Child's Casebook: Difficult Passage
26 Sep 2023
Members only
Aortic Dissection Awareness Week: 17 to 23 September
Know the signs
18 Sep 2023
Laura's Story
25 Aug 2023
Dr Child's Casebook: Infection Trap
Should persistently infected tonsils be removed?
22 Aug 2023
Members only
#MarfanMondays: Making MarFriends
14 Aug 2023
Life is a Cabaret
In memory, but also in hope of a better future
8 Aug 2023
Dr Child's Casebook: The Path of Marfan?
The wisdom of preventative medication
31 Jul 2023
Members only
Pectus Update
A new approach to the treatment of pectus problems
26 Jul 2023
Research Update
26 Jul 2023
Lucy's Blog: Part 7
16 Jul 2023
Dr Child's Casebook: Marfan and Music
When painful joints interrupt the marriage of Marfan and Music
11 Jul 2023
Members only
Dr Child's Casebook: The Price of Life
Everything comes at a cost ...
30 Jun 2023
World Pneumothorax Day 2023
30 Jun 2023
Dr Child's Casebook: Talking Marfan Syndrome
When talking becomes painful
25 Jun 2023
Members only
Chancey and Isabella
A new (Mar)friendship
21 Jun 2023
Dr Child's Casebook: Pain Perspective
When is pain Marfan associated?
18 Jun 2023
Members only
Dr Child's Casebook: Marfan Manifestations
Bruising and blemishes
26 May 2023
Members only
Tom Reveler
A gentle giant
24 May 2023
We Are Here to Help You!
Mental Health Awareness Week: 15 - 21 May 2023
17 May 2023
Mitral Valve Regurgitation
What is it?
16 May 2023
Dr Child's Casebook: Preventative Measures
Anticipating potential problems post medical procedure?
12 May 2023
Dr Child's Casebook: The Next Generation
Planning for the future
2 May 2023
Members only
Tom and Chloe
a beautiful story of love and loss
27 Apr 2023
Dr Child's Casebook: Unexpected Finding
Are cysts a cause for concern?
13 Apr 2023
Members only
Dr Child's Casebook: Body Branding
Can adorning your body pose a danger to your body?
31 Mar 2023
Members only
Dr Child's Casebook: Expert Evidence
Generalist v. Specialist
24 Mar 2023
Members only
Major General Sir Sebastian Roberts OBE
A Tribute
20 Mar 2023
Dr Child's Casebook: Exercising Choice
Marfan & Exercise
12 Mar 2023
Members only
Lucy's Blog: Part 6
28 Feb 2023
Cairo-Mia's Story
Illustrating Marfan Syndrome
28 Feb 2023
Loui's Story
Appearances Can Be Deceptive
26 Feb 2023
Dr Child's Casebook: Interpreting Pain
There's no pain without brain
22 Feb 2023
Members only
Jonathan's Story
"If only I'd known"
22 Feb 2023
Marfan and Medicine
Can trainee registrars correctly identify MFS?
20 Feb 2023
Marfan Awareness Pamphlet
Download our leaflet today
13 Feb 2023
Dr Child's Casebook: Broken Breathing
Airways and Anaesthesia
7 Feb 2023
Members only
Julie's Story
When did you first hear of Marfan syndrome?
2 Feb 2023
#MarfanMondays: Live Long and Prosper
by Camilla Allen
30 Jan 2023
Dr Child's Casebook: Extra Help?
A new diagnosis can prove costly
27 Jan 2023
Members only
Dr Child's Casebook: On the Pulse
The beat of life
12 Jan 2023
Members only
#MarfanMondays: Jeremy Wins
by Dr Anne Child MD FRCP
10 Jan 2023
Isabella Spreads the Word
Young and Determined!
5 Jan 2023
Introducing our Nurse Specialist
Meet Joanne Jessup
17 Dec 2022
Sonalee Laboratory Research Update
José discusses his latest projects
17 Dec 2022
Growth Management in Marfan Syndrome
by Dr Samuel Sussmes
17 Dec 2022
Gareth's Story
Surveillance is critical to survival ...
15 Dec 2022
Dr Child's Casebook: Waiting Game
What to do while awaiting a diagnosis ...
12 Dec 2022
Members only
Dr Child's Casebook: In a Snap
Often overused the knee is frequently injured
4 Dec 2022
Members only
Dr Child's Casebook: Similar But Different
Letters missing from our genetic jigsaw can cause MFS or something similar
27 Nov 2022
Members only
Dr Child's Casebook: Living with a Label
Is a connective tissue disorder just a label?
18 Nov 2022
Lucy's Blog: Part 5
by Lucy-Alexandra Atkinson
15 Nov 2022
Lula's New Focus
After complex eye surgery and a horrible scare, Lula has a new clarity of vision!
10 Nov 2022
Jamie's Story
A happy healthy farmer with an undiagnosed condition
7 Nov 2022
Dr Child's Casebook: Declaration Dilemma
Should you divulge your health condition when completing job applications?
4 Nov 2022
Members only
Elsa's Story
in pursuit of fitness with Marfan syndrome
1 Nov 2022
Dr Child's Casebook: Time to Heal?
Does a connective tissue disorder delay the healing process?
28 Oct 2022
Members only
Dr Child's Casebook: Maturing with Marfan
Living better with Marfan syndrome
14 Oct 2022
Members only
Hayley's Story
Improving diagnosis of Marfan syndrome
10 Oct 2022
Dr Child's Casebook: Vices and Virtues
Quit the habit?
5 Oct 2022
Members only
Tim's Story
Running for a Friend
3 Oct 2022
Dr Child's Casebook: Quest for Clarity
Obtaining diagnostic certainty
28 Sep 2022
Members only
Lana's Story: a Tale of Three Sisters
Lana's Long Run
26 Sep 2022
Dr Child's Casebook: Point Break?
Are Marfan folk susceptible to fractures?
14 Sep 2022
Members only
Dr Child's Casebook: A Process of Elimination
How to determine the root cause
8 Sep 2022
Members only
Collaborative Trials Prove Losartan/Irbesartan Effective in Marfan Syndrome
4 Sep 2022
Dr Child's Casebook: Weak at the Knees
Should my child's knock knees be treated surgically?
2 Sep 2022
Members only
Charles' Story
A newly diagnosed Marfan with a bright future
31 Aug 2022
A Muddy Marfan Challenge: Helen's Quest
Helen faces her fears!
26 Aug 2022
Dr Child's Casebook: Inside My Mind?
Does anxiety emanate from inside or outside?
25 Aug 2022
Members only
Liam's Story
Liam loved life and lived fully
22 Aug 2022
Dr Child's Casebook: Heartfelt Measures
An inherited condition permeates the generations, creating a pattern of development ...
18 Aug 2022
Members only
Lindsey's Story
a life less ordinary
16 Aug 2022
Holiday Baggage?
Holiday baggage that is mental as well as physical
11 Aug 2022
Members only
Dr Child's Casebook: Diverted Focus
After seemingly successful eye surgery, a supporter is experiencing visual disturbances ...
4 Aug 2022
Members only
Dr Child's Casebook: Heat in the Heart
A recent heatwave put life on hold but can it also endanger life?
27 Jul 2022
Members only
Dressing Tall
The long and the short of it is ...
25 Jul 2022
Dr Child's Casebook: Parallel Connections
In the absence of an LDS support group, patients turn to us for advice
20 Jul 2022
Members only
Lucy's Blog: Part 4
by Lucy-Alexandra Atkinson
18 Jul 2022
Dr Child's Casebook: The Bottom Line
Is surgery appropriate?
14 Jul 2022
Members only
Amiyah's Story
A little Marf and her Mum
11 Jul 2022
Dr Child's Casebook: Spinal Conundrum
When to medically intervene ?
7 Jul 2022
Members only
Books for Children
by Sophia Kazmi
4 Jul 2022
Dr Child's Casebook: With Every Breath
World Pneumothorax Day
30 Jun 2022
Climbing for a Cause
Intrepid 13-year-old George faces his biggest fears for the Marfan Trust
27 Jun 2022
Dr Child's Casebook: One a Day?
The science of supplements
22 Jun 2022
Members only
Stamp for Marfan!
Postage makes pounds for the Marfan Trust
20 Jun 2022
Dr Child's Casebook: Cause for Concern?
Is a small but sudden leap in one's aortic reading necessarily alarming?
15 Jun 2022
Members only
James Griffin
Never was there another who lived so fully
13 Jun 2022
Dr Child's Casebook: Is There Something I Should Know?
Do I have a connective tissue disorder and if so, should I know?
9 Jun 2022
Members only
Dr Child's Casebook: What to Say?
How to approach the subject of Marfan syndrome?
1 Jun 2022
Members only
SOS from Ukraine: Part 1
Seeking sanctuary in the UK, a Ukranian with Marfan syndrome needs our help
27 Apr 2022
Alan's Story
My Life with Marfan Syndrome
28 Mar 2022
Do They Or Don't They?
Famous, and Famously Fictional, Folk with Marfan Syndrome ...or something similar
15 Mar 2022
From the British Museum
An Unexpected Celebration of Marfan Syndrome
13 Dec 2021
Lucy's Blog: Part 3
by Lucy-Alexandra Atkinson
21 Oct 2021
Summer in the Sonalee Laboratory
New Research at the Marfan Trust
13 Aug 2021
On the Frontline
A Marfan medical student offers us a rare glimpse into life on the hospital ward during COVID's reign
23 Jul 2021
Members only
Lucy's Blog: Part 2
by Lucy-Alexandra Atkinson
1 Jul 2021
Lucy's Blog: The Critique of my Marfan Physique
By Lucy-Alexandra Atkinson
27 May 2021
Chris's Story
When an overheard conversation saves a life
13 May 2021
Stuart's Story - A Unique Journey
Walking in the shadow of our namesake!
1 Apr 2021
Myths and Misinformation Debunked! The Vaccine, Explained
A recipient of the vaccine herself, Dr Anne Child dispels disinformation and sets things straight
18 Feb 2021
Members only
Christopher’s Story: Marfan Awareness Month
This is the story of Christopher whose Marfan syndrome was captured at an early age, allowing him to claim his condition
16 Feb 2021
In Good Company
Marfan syndrome is writ large on the cinema screen, and lurks behind the sensational sounds of Broadway - here are three notable names
11 Feb 2021
Awareness Saves Lives: Wayne & Lewis' Story
This is the story of Wayne and Lewis - of a life lost and a life shaped by Marfan syndrome
9 Feb 2021
Lost in Translation - Marfan Encyclopaedia
This article elucidates, delineates and celebrates marfanoid medicalise in a comprehensive list!
5 Feb 2021
Bereavement Advice
This article gathers indispensable pieces of advice forming a one-stop Guide to Grief
21 Jan 2021
Psychosocial Aspects of Marfan Syndrome
“Let Marfan syndrome be the passenger on your bus, not its driver”
10 Dec 2020
Members only
Research Report
Dr José Aragon-Martin turned lockdown into ‘heads down’, honing his sequencing skills, analysing his datasets and submitting two manuscript
10 Dec 2020
‘Remote’ Insight from our Chair
The Trust will be working with and for you, as we all get through this winter, the pandemic and look forward to more comfortable times
10 Dec 2020
Fundraising Update Winter 2020
As with all charities, the Marfan Trust had to transform, innovate and adapt to the changing times.
10 Dec 2020
Research As Empowerment!
When your past is a blank page you are left feeling powerless. This story highlights the need for more research and awareness of Marfan syndrome
4 Dec 2020
How Did The Sonalee Laboratory Come About
Although Sonalee’s Marfan syndrome was not recognised until later on in life, she felt its impact from an early age.
19 Nov 2020
How To Be Happy
Stop kidding yourself that you can control more than you actually can.
13 Nov 2020
Latest Statement on Covid-19 from The Marfan Trust
With the newly introduced Rule of Six, we assess what you can – and can’t! – do when meeting friends and family
11 Sep 2020
Diagnosis of Marfan Syndrome
In her two-part Casebook Appearances Can Be Deceptive Dr Child discussed the misleading mimics and disguised carriers of Marfan syndrome
10 Sep 2020
Members only
Straight up!
A momentous innovation in the surgical treatment of scoliosis was recently reported to our Facebook page
3 Sep 2020
Members only
Dexamethasone – A Panacea?
From humble steroid to heralded superhero, Dexamethasone is a basic anti-inflammatory recently catapulted into the headlines
23 Jul 2020
Members only
Pause For Thought - The Power of Mindfulness
Pressing pause on modern life has offered the world significant pause for thought
3 Jul 2020
Gastrointestinal Disturbances in Marfan syndrome
A significant proportion of patients with Marfan syndrome (MFS) have gastrointestinal disturbances constituting irritable bowel syndrome (IBS)
11 Jun 2020
Members only
Marfan Trust Collaborates with Cambridge University
Frozen skin cell samples donated in the past by Marfan syndrome patients are being wakened up to test new medications in the laboratory
4 Jun 2020
New Gene Discovered for Non-Marfan Scoliosis (Spinal Curvature)
The discovery of Genetic Mutation in TTLL11 Gene will allow us to screen children of a scoliosis parent
6 May 2020
Members only
How to Access the Drug Irbesartan
Following the successful completion of the AIMS Trial the drug Irbesartan has been shown to be effective in delaying aortic root widening
6 May 2020
Members only
AIMS Results Show Irbesartan is Effective in Marfan Syndrome
Results show that the drug Irbesartan reduces aortic dilatation in children and young adults with Marfan syndrome
5 May 2020
Members only
COVID-19 Advice for Pregnant Women
This advice is based on a combination of available evidence, good practice, and expert advice
30 Apr 2020
Members only
On the Home Front at Marfan HQ
On the Home Front at Marfan HQ
30 Mar 2020
More Choice for Marfans patients with New "External" Wrap Technique
'PEARS' is a new external ‘wrap’ technique for treatment of ascending aortic aneurysm, is gaining support worldwide
27 Nov 2019
Members only
Advice for Teenagers with Marfan Syndrome
We recently received the following plea for support from the anxious parent of an affected teenager
20 Nov 2019
Members only
AIMS Study Paper Accepted for Publication
The Marfan Trust has an important paper accepted for publication based on its groundbreaking study
20 Nov 2019
Members only
What is Marfan Syndrome?
25% of Marfan syndrome patients are the first one affected in the family.
30 Sep 2019
Members only
Fatigue and Depression in Marfan Syndrome
A 44 year old man with Marfan syndrome rang for advice as he was falling asleep at his desk
7 May 2019
Members only
Supporter Achievements - Dan Hyde
Congratulations to Dan Hyde on the great achievement of being appointed as Director of Music at King’s College, Cambridge.
1 May 2019
Incidence of Pneumothorax in Marfan Syndrome
What is the correct incidence of pneumothorax (free air in the chest cavity that causes the lungs to collapse) in Marfan syndrome?
9 Oct 2018
Members only
Management of Pain in Marfan Syndrome
8 Oct 2018
Members only
AIMS Trial - Results Positive
AIMS trial results show that Irbesartan is well tolerated with very few side effects
10 Sep 2018
Members only
The Acceptability of Prenatal Diagnosis & Pre-Implantation
Latest research can help decisions when starting a family
6 Sep 2017
Members only
Update and Diagnoses
Latest diagnostic approaches
30 May 2017
Members only
Q&A: Joint and Muscle Problems in Marfan Syndrome
Dr Anne Child and Professor Rodney Grahame explain all
29 May 2017
Members only
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Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at info@marfantrust.org or by phone on + 44 (0)333 011 5256
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