Dr Child's Casebook: Bittersweet Blessings?

Anxious about potential side effects of the COVID vaccine, a Marfan supporter finds his worries dispelled by Dr Child
10 Feb 2021
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Awareness Saves Lives: Wayne & Lewis' Story

This is the story of Wayne and Lewis - of a life lost and a life shaped by Marfan syndrome
9 Feb 2021

Lost in Translation - Marfan Encyclopaedia

This article elucidates, delineates and celebrates marfanoid medicalise in a comprehensive list!
5 Feb 2021

Dr Child's Casebook: When Two Become Three

A couple approached Dr Child for advice on pre-implantation genetic diagnosis (PGD) in vitro fertilisation (IVF)
3 Feb 2021
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Dr Child's Casebook: Forethought Spares Afterthought

Dr Child navigates Pre-Implantation Genetic Diagnosis in her latest Casebook
27 Jan 2021
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Bereavement Advice

This article gathers indispensable pieces of advice forming a one-stop Guide to Grief
21 Jan 2021

Dr Child's Casebook: The Engine of Life

Emerging from a 10-hour cardiac operation, a young adult developed an infection prompting his worried parent to call upon Dr Child
20 Jan 2021
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Dr Child's Casebook: Torn Hopes?

A young father-to-be with Marfan Syndrome has concerns that his potentially expanding aorta will tear and stop him from being father to his child
19 Jan 2021
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Dr Child's Casebook: Head in the Clouds

Plagued by little cloud-like particles floating around his field of vision, a 65-year-old Marfan patient immediately sought medical advice
6 Jan 2021
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Dr Child's Casebook: Raising A New Hope

Pregnant with her first baby, an Italian in London sought Dr Child’s advice on childbirth in Marfan syndrome
17 Dec 2020
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Don't Look Back

Our campaign concludes on a note of hope with a story emblematic of the life-enhancing role played by research
11 Dec 2020

Research Report

Dr José Aragon-Martin turned lockdown into ‘heads down’, honing his sequencing skills, analysing his datasets and submitting two manuscript
10 Dec 2020

Fundraising Update Winter 2020

As with all charities, the Marfan Trust had to transform, innovate and adapt to the changing times.
10 Dec 2020

Psychosocial Aspects of Marfan Syndrome

“Let Marfan syndrome be the passenger on your bus, not its driver”
10 Dec 2020
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Marfan Trust Newsletter Autumn-Winter 2020

Download our Paper Newsletter Here
10 Dec 2020

‘Remote’ Insight from our Chair

The Trust will be working with and for you, as we all get through this winter, the pandemic and look forward to more comfortable times
10 Dec 2020

Dr Child's Casebook: Right of Way

Unknown Priority - SHOULD those with Marfan syndrome receive the vaccine ahead of the general population
9 Dec 2020
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Research As Empowerment!

When your past is a blank page you are left feeling powerless. This story highlights the need for more research and awareness of Marfan syndrome
4 Dec 2020

Dr Child's Casebook – Mobilising the Past

A new diagnosis in the family prompts a long reflection on the past.
2 Dec 2020
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Dr Child's Casebook – Feeling Unhinged

A patient wants to know how common tibia dislocations are with Marfan syndrome.
25 Nov 2020
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Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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