Sara's Story

From the Rooftop of the World
30 Oct 2023

Dr Child's Casebook: The Science of Sleep

Suggested paths to the perfect night's sleep
19 Oct 2023
Members only

Carole Finkletaub

A warm-hearted woman who turned her private sorrow into a force for good
16 Oct 2023

Josie & Greg

How a daughter's diagnosis saved her father's life
11 Oct 2023

Dr Child's Casebook: Difficult Passage

26 Sep 2023
Members only

Aortic Dissection Awareness Week: 17 to 23 September

Know the signs
18 Sep 2023

Marfan Trust Guide for Schools and Colleges

Our one-stop booklet is out today
4 Sep 2023

Laura's Story

25 Aug 2023

Dr Child's Casebook: Infection Trap

Should persistently infected tonsils be removed?
22 Aug 2023
Members only

The Psychosocial Aspects of Marfan Syndrome

Please complete our one-off questionnaire to help us help you
14 Aug 2023

#MarfanMondays: Making MarFriends

14 Aug 2023

Life is a Cabaret

In memory, but also in hope of a better future
8 Aug 2023

Dr Child's Casebook: The Path of Marfan?

The wisdom of preventative medication
31 Jul 2023
Members only

Pectus Update

A new approach to the treatment of pectus problems
26 Jul 2023

Research Update

26 Jul 2023

Marfan Matters: Spring/Summer Newsletter

Bursting with news ...
26 Jul 2023

Summer Student Research: Neonatal Marfan Syndrome

Interview with Elsa Harte
21 Jul 2023

Lucy's Blog: Part 7

16 Jul 2023

Dr Child's Casebook: Marfan and Music

When painful joints interrupt the marriage of Marfan and Music
11 Jul 2023
Members only

Dr Child's Casebook: The Price of Life

Everything comes at a cost ...
30 Jun 2023
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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