Sometimes we need a little extra help in navigating the cost of living. To address this we've collected a list of charities who are willing to assist people with Marfan & Loeys-Dietz Syndromes. From needing a washing machine to help in securing a mobility scooter, here are your go-to organisations.
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at:
c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY.
Contact us at [email protected] or by phone on + 44 (0)333 011 5256