Remembering Sue Beer

An avid reader from the age of 3 despite dislocated lenses, Sue didn’t let MFS stand in her way ...
8 Dec 2022

Dr Child's Casebook: In a Snap

Often overused the knee is frequently injured
4 Dec 2022
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Dr Child's Casebook: Similar But Different

Letters missing from our genetic jigsaw can cause MFS or something similar
27 Nov 2022
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Dr Child's Casebook: Living with a Label

Is a connective tissue disorder just a label?
18 Nov 2022

Lucy's Blog: Part 5

by Lucy-Alexandra Atkinson
15 Nov 2022

Lula's New Focus

After complex eye surgery and a horrible scare, Lula has a new clarity of vision!
10 Nov 2022

Jamie's Story

A happy healthy farmer with an undiagnosed condition
7 Nov 2022

Dr Child's Casebook: Declaration Dilemma

Should you divulge your health condition when completing job applications?
4 Nov 2022
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Elsa's Story

in pursuit of fitness with Marfan syndrome
1 Nov 2022

Dr Child's Casebook: Time to Heal?

Does a connective tissue disorder delay the healing process?
28 Oct 2022
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Diane Rust

A remarkable woman
17 Oct 2022

Dr Child's Casebook: Maturing with Marfan

Living better with Marfan syndrome
14 Oct 2022
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Hayley's Story

Improving diagnosis of Marfan syndrome
10 Oct 2022

Dr Child's Casebook: Vices and Virtues

Quit the habit?
5 Oct 2022
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Tim's Story

Running for a Friend
3 Oct 2022

Dr Child's Casebook: Quest for Clarity

Obtaining diagnostic certainty
28 Sep 2022
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Lana's Story: a Tale of Three Sisters

Lana's Long Run
26 Sep 2022

Dr Child's Casebook: Point Break?

Are Marfan folk susceptible to fractures?
14 Sep 2022
Members only

Dr Child's Casebook: A Process of Elimination

How to determine the root cause
8 Sep 2022
Members only

Collaborative Trials Prove Losartan/Irbesartan Effective in Marfan Syndrome

4 Sep 2022
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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