Derek's Story

Raising awareness
23 Jan 2023

Dr Child's Casebook: On the Pulse

The beat of life
12 Jan 2023
Members only

#MarfanMondays: Jeremy Wins

by Dr Anne Child MD FRCP
10 Jan 2023

Isabella Spreads the Word

Young and Determined!
5 Jan 2023

Growth Management in Marfan Syndrome

by Dr Samuel Sussmes
17 Dec 2022

Introducing our Nurse Specialist

Meet Joanne Jessup
17 Dec 2022

Sonalee Laboratory Research Update

José discusses his latest projects
17 Dec 2022

Marfan Matters: Autumn-Winter 2022 Edition

Download our Newsletter
17 Dec 2022

Gareth's Story

Surveillance is critical to survival ...
15 Dec 2022

Dr Child's Casebook: Waiting Game

What to do while awaiting a diagnosis ...
12 Dec 2022
Members only

Remembering Sue Beer

An avid reader from the age of 3 despite dislocated lenses, Sue didn’t let MFS stand in her way ...
8 Dec 2022

Dr Child's Casebook: In a Snap

Often overused the knee is frequently injured
4 Dec 2022
Members only

Dr Child's Casebook: Similar But Different

Letters missing from our genetic jigsaw can cause MFS or something similar
27 Nov 2022
Members only

Dr Child's Casebook: Living with a Label

Is a connective tissue disorder just a label?
18 Nov 2022

Lucy's Blog: Part 5

by Lucy-Alexandra Atkinson
15 Nov 2022

Lula's New Focus

After complex eye surgery and a horrible scare, Lula has a new clarity of vision!
10 Nov 2022

Jamie's Story

A happy healthy farmer with an undiagnosed condition
7 Nov 2022

Dr Child's Casebook: Declaration Dilemma

Should you divulge your health condition when completing job applications?
4 Nov 2022
Members only

Elsa's Story

in pursuit of fitness with Marfan syndrome
1 Nov 2022

Dr Child's Casebook: Time to Heal?

Does a connective tissue disorder delay the healing process?
28 Oct 2022
Members only
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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