Dr Child's Casebook: Weak at the Knees

Should my child's knock knees be treated surgically?
2 Sep 2022
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Charles' Story

A newly diagnosed Marfan with a bright future
31 Aug 2022

Nurse Needed

We seek a Clinical Nurse Specialist in Inherited Cardiac Conditions (ICC)
26 Aug 2022

A Muddy Marfan Challenge: Helen's Quest

Helen faces her fears!
26 Aug 2022

Dr Child's Casebook: Inside My Mind?

Does anxiety emanate from inside or outside?
25 Aug 2022
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Liam's Story

Liam loved life and lived fully
22 Aug 2022

Dr Child's Casebook: Heartfelt Measures

An inherited condition permeates the generations, creating a pattern of development ...
18 Aug 2022
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Lindsey's Story

a life less ordinary
16 Aug 2022

Holiday Baggage?

Holiday baggage that is mental as well as physical
11 Aug 2022
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Dr Child's Casebook: Diverted Focus

After seemingly successful eye surgery, a supporter is experiencing visual disturbances ...
4 Aug 2022
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Dr Child's Casebook: Heat in the Heart

A recent heatwave put life on hold but can it also endanger life?
27 Jul 2022
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Dressing Tall

The long and the short of it is ...
25 Jul 2022

Dr Child's Casebook: Parallel Connections

In the absence of an LDS support group, patients turn to us for advice
20 Jul 2022
Members only

Lucy's Blog: Part 4

by Lucy-Alexandra Atkinson
18 Jul 2022

Dr Child's Casebook: The Bottom Line

Is surgery appropriate?
14 Jul 2022
Members only

Amiyah's Story

A little Marf and her Mum
11 Jul 2022

Dr Child's Casebook: Spinal Conundrum

When to medically intervene ?
7 Jul 2022
Members only

Research Update: Loeys-Dietz Syndrome

by Amy O'Reilly
4 Jul 2022

Books for Children

by Sophia Kazmi
4 Jul 2022

School Risk Assessment & Recommendations

by the relative of a Marfan teenager
3 Jul 2022
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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