Jamal's Story

29 Mar 2022

Alan's Story

My Life with Marfan Syndrome
28 Mar 2022

Dr Child's Casebook: Unexpected and Unusual

When hopes for an unaffected baby become complicated ....
18 Mar 2022
Members only

Do They Or Don't They?

Famous, and Famously Fictional, Folk with Marfan Syndrome ...or something similar
15 Mar 2022

Marfan and Me

by Sarah Nuttman
14 Mar 2022

Dr Child's Casebook: Shapes and Sizes

Weighing Up the Ideal?
9 Mar 2022
Members only

Ralph and Bronwen

A story with a (happy) twist in the tale
7 Mar 2022

Dr Child's Casebook: Elective Travel

Can insurers discern the difference between elective and emergency surgery?
4 Mar 2022
Members only

Marfan Awareness Month: The Final Word

Professor John Pepper clarifies the life-saving role of early diagnosis
28 Feb 2022

The GP Who Came To Tea

... and saved a life
25 Feb 2022

Alert Medics To The Features of MFS

Dr Naqvi describes what to watch for as a medic
24 Feb 2022

Dr Child's Casebook: Digestive Dilemmas

The Stomach and Connective Tissue Disorders
23 Feb 2022
Members only

Lucy and Marfan Awareness

A condition as complex as MFS can leave you feeling isolated and alone, especially when doctors cannot help you navigate your medical journey ...
21 Feb 2022

Dr Child's Casebook: Anatomy of a Diagnosis

When symptoms should be treated not separately but as a whole
16 Feb 2022

Steffanie's Story

Steffanie and Angel
15 Feb 2022

Press Release: Marfan Awareness Month

Hiding in plain sight - a deadly secret
13 Feb 2022

Check In; Check It Out

by Dr Anne Child
11 Feb 2022

Dr Child's Casebook: The Age of Uncertainty

Poised awkwardly between childhood and adulthood and left in physical limbo
10 Feb 2022

Signs and Symptoms: a Deadly Secret?

Recognising the visible features of Marfan syndrome is a route to identifying the invisible, potentially deadly, feature...
8 Feb 2022

Jonathan's Story

Marfan Awareness Month 2022
4 Feb 2022
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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