Jonathan's Story

Marfan Awareness Month 2022
4 Feb 2022

Dr Child's Casebook: Assisted Independence

Can The Marfan Trust write a letter of support for a Personal independence payment?
3 Feb 2022

Dr Child's Casebook: The Feeding Journey

Does anyone have any advice to share on breastfeeding a Marfan baby'?
28 Jan 2022

Fundraiser's Feat - Stuart's Story

Story of Triumph over Adversity
21 Jan 2022

Dr Child's Casebook: Unexpected News

With a new diagnosis of Marfan syndrome in the family come many questions
20 Jan 2022
Members only

Dr Child's Casebook: Out of Focus

We view life through a lens. What if the lens disconnects?
14 Jan 2022

Dr Child's Casebook: Timing is Everything

When to wait and when to act?
5 Jan 2022

Dr Child's Casebook: The Long Haul

With research and medicine come life and longevity in MFS
15 Dec 2021
Members only

Psychological Well-Being: Living and Thriving

By Dr Zoe Berger, Consultant Clinical Psychologist, Great Ormond Street Hospital
14 Dec 2021

How Tall is Too Tall? Treatment for Excessive Stature

By Dr Anne Child MD FRCP
14 Dec 2021

Marfan Matters: Autumn - Winter 2021

Download our Paper Magazine Here
14 Dec 2021

Recent Research in the Sonalee Laboratory

By Dr José Aragon-Martin
14 Dec 2021

From the British Museum

An Unexpected Celebration of Marfan Syndrome
13 Dec 2021

Marfan Information Day 2021 Videos

9 Dec 2021

Dr Child's Casebook: Breathing Music

Are wind instruments compatible with Marfan syndrome?
8 Dec 2021
Members only

The Mystery of Pain

Chest discomfort is a pain pathway to myriad disorders
2 Dec 2021
Members only

Do They or Don’t They?

Jonathan Larson
29 Nov 2021

Let's Celebrate Our Supporters

Freddie's Story
25 Nov 2021

Dr Child's Casebook: A Driving Concern

What Should I Say to the DVLA?
24 Nov 2021

Aortic Awareness

Do They or Don’t They? Richie Faulkner of Judas Priest
22 Nov 2021
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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