The GP Who Came To Tea

... and saved a life
25 Feb 2022

Alert Medics To The Features of MFS

Dr Naqvi describes what to watch for as a medic
24 Feb 2022

Dr Child's Casebook: Digestive Dilemmas

The Stomach and Connective Tissue Disorders
23 Feb 2022
Members only

Lucy and Marfan Awareness

A condition as complex as MFS can leave you feeling isolated and alone, especially when doctors cannot help you navigate your medical journey ...
21 Feb 2022

Dr Child's Casebook: Anatomy of a Diagnosis

When symptoms should be treated not separately but as a whole
16 Feb 2022

Steffanie's Story

Steffanie and Angel
15 Feb 2022

Press Release: Marfan Awareness Month

Hiding in plain sight - a deadly secret
13 Feb 2022

Check In; Check It Out

by Dr Anne Child
11 Feb 2022

Dr Child's Casebook: The Age of Uncertainty

Poised awkwardly between childhood and adulthood and left in physical limbo
10 Feb 2022

Signs and Symptoms: a Deadly Secret?

Recognising the visible features of Marfan syndrome is a route to identifying the invisible, potentially deadly, feature...
8 Feb 2022

Jonathan's Story

Marfan Awareness Month 2022
4 Feb 2022

Dr Child's Casebook: Assisted Independence

Can The Marfan Trust write a letter of support for a Personal independence payment?
3 Feb 2022

Dr Child's Casebook: The Feeding Journey

Does anyone have any advice to share on breastfeeding a Marfan baby'?
28 Jan 2022

Fundraiser's Feat - Stuart's Story

Story of Triumph over Adversity
21 Jan 2022

Dr Child's Casebook: Unexpected News

With a new diagnosis of Marfan syndrome in the family come many questions
20 Jan 2022
Members only

Dr Child's Casebook: Out of Focus

We view life through a lens. What if the lens disconnects?
14 Jan 2022

Dr Child's Casebook: Timing is Everything

When to wait and when to act?
5 Jan 2022

Dr Child's Casebook: The Long Haul

With research and medicine come life and longevity in MFS
15 Dec 2021
Members only

Marfan Matters: Autumn - Winter 2021

Download our Paper Magazine Here
14 Dec 2021

Psychological Well-Being: Living and Thriving

By Dr Zoe Berger, Consultant Clinical Psychologist, Great Ormond Street Hospital
14 Dec 2021
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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