Dr Child's Casebook: Digestive Dilemmas

The Stomach and Connective Tissue Disorders
23 Feb 2022
Members only

Lucy and Marfan Awareness

A condition as complex as MFS can leave you feeling isolated and alone, especially when doctors cannot help you navigate your medical journey ...
21 Feb 2022

Dr Child's Casebook: Anatomy of a Diagnosis

When symptoms should be treated not separately but as a whole
16 Feb 2022

Steffanie's Story

Steffanie and Angel
15 Feb 2022

Press Release: Marfan Awareness Month

Hiding in plain sight - a deadly secret
13 Feb 2022

Check In; Check It Out

by Dr Anne Child
11 Feb 2022

Dr Child's Casebook: The Age of Uncertainty

Poised awkwardly between childhood and adulthood and left in physical limbo
10 Feb 2022

Signs and Symptoms: a Deadly Secret?

Recognising the visible features of Marfan syndrome is a route to identifying the invisible, potentially deadly, feature...
8 Feb 2022

Jonathan's Story

Marfan Awareness Month 2022
4 Feb 2022

Dr Child's Casebook: Assisted Independence

Can The Marfan Trust write a letter of support for a Personal independence payment?
3 Feb 2022

Dr Child's Casebook: The Feeding Journey

Does anyone have any advice to share on breastfeeding a Marfan baby'?
28 Jan 2022

Fundraiser's Feat - Stuart's Story

Story of Triumph over Adversity
21 Jan 2022

Dr Child's Casebook: Unexpected News

With a new diagnosis of Marfan syndrome in the family come many questions
20 Jan 2022
Members only

Dr Child's Casebook: Out of Focus

We view life through a lens. What if the lens disconnects?
14 Jan 2022

Dr Child's Casebook: Timing is Everything

When to wait and when to act?
5 Jan 2022

Dr Child's Casebook: The Long Haul

With research and medicine come life and longevity in MFS
15 Dec 2021
Members only

Psychological Well-Being: Living and Thriving

By Dr Zoe Berger, Consultant Clinical Psychologist, Great Ormond Street Hospital
14 Dec 2021

How Tall is Too Tall? Treatment for Excessive Stature

By Dr Anne Child MD FRCP
14 Dec 2021

Marfan Matters: Autumn - Winter 2021

Download our Paper Magazine Here
14 Dec 2021

Recent Research in the Sonalee Laboratory

By Dr José Aragon-Martin
14 Dec 2021
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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