On the Frontline

A Marfan medical student offers us a rare glimpse into life on the hospital ward during COVID's reign
23 Jul 2021
Members only

Dr Child's Casebook: The Long Reach

Is there anyone in our Marfan community with a liking for rowing?
21 Jul 2021
Members only

Dr Child's Casebook: Standing Tall

A parent called to discuss the merits of medical intervention to suppress her daughter’s height
14 Jul 2021
Members only

Dr Child's Casebook: The Anatomy of Protection - Dural Ectasia

Completing the protective encasement around the central nervous system, dura mater is Latin for "tough mother"
8 Jul 2021

Lucy's Blog: Part 2

by Lucy-Alexandra Atkinson
1 Jul 2021

Dr Child's Casebook: The Science of Stroke

Making New Connections
30 Jun 2021
Members only

Fundraising in Tricky Times

by Gurpreet Madan
25 Jun 2021

Marfan Matters: Spring - Summer 2021

Download our Paper Magazine Here
25 Jun 2021

Helpline ... a Lifeline

by Victoria Hilton
25 Jun 2021

Research in the Sonalee Lab

by Dr José Aragon-Martin
25 Jun 2021

Breaking News ... Results of the COVID-19 Pandemic Questionnaire

by Mohamed Abdelrazek, Thomas Whittaker, Dr José Aragon-Martin, Dr Anne Child
25 Jun 2021

Dr Child's Casebook: Bruising and Bleeding

Handle With Care
23 Jun 2021
Members only

Dr Child's Casebook: Growing Up Too Fast, Literally

Are stretch marks and wide armspan possible signs of Marfan syndrome?
16 Jun 2021
Members only

Dr Child's Casebook: The Anatomy of Fatigue

Can Marfan syndrome cause fatigue?
9 Jun 2021

Dr Child's Casebook: On Hand

Is there a connection between Marfan syndrome and Dupuytren’s?
2 Jun 2021
Members only

Lucy's Blog: The Critique of my Marfan Physique

By Lucy-Alexandra Atkinson
27 May 2021

Dr Child's Casebook: All Ears!

Is there a link between my narrow ear canals and Marfan syndrome?
26 May 2021
Members only

Dr Child's Casebook: Weighing Up

While there’s no quick fix for Marfan folk to put on pounds, Dr Child has some tips up her sleeve
19 May 2021
Members only

Chris's Story

​When an overheard conversation saves a life
13 May 2021

Dr Child's Casebook: Emergency v. Elective

Early Detection is Essential
12 May 2021
Members only
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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