On the Home Front at Marfan HQ

On the Home Front at Marfan HQ
30 Mar 2020

A Word from the Trustees

By Michael Heath, Chair of Marfan Trust Board of Trustees
30 Mar 2020

Marfan Trust Statement on COVID-19

​As Coronavirus continues, the Marfan Trust would like to provide some guidance to our community
17 Mar 2020

Tribute to Dr Michael Carr, Former Marfan Trust Chair

By Anne Child MD FRCP
28 Feb 2020

Marfan Trust Now Fully Staffed

We’re delighted to announce that Victoria Hilton and Gurpreet Madan have joined the Trust as full time staff members
26 Feb 2020

Donate to us with Amazon Smile

Use Amazon Smile for all your Amazon Purchases and Amazon will donate to the Marfan Trust
6 Jan 2020

Trustees' Message

At the Royal Brompton Hospital in Chelsea is the Guy Scadding Building, the new home of the Marfan Trust
27 Nov 2019

Marfan Association Merges with Marfan Trust

​The Marfan Association has sadly closed down
27 Nov 2019

More Choice for Marfans patients with New "External" Wrap Technique

'PEARS' is a new external ‘wrap’ technique for treatment of ascending aortic aneurysm, is gaining support worldwide
27 Nov 2019
Members only

AIMS Study Paper Accepted for Publication

The Marfan Trust has an important paper accepted for publication based on its groundbreaking study
20 Nov 2019
Members only

All Change for Marfan Trust Team

Along with our office move, the Marfan Trust Team has changed and will continue to evolve further.
20 Nov 2019

BHF Award Goes to Dr Anne Child

The British Heart Foundation recognised Dr Child’s contribution, in the Heart Heroes Award category
20 Nov 2019

Turn Old Postage Stamps into Donations

Did you know that used postage stamps can be sold to stamp dealers for cash to raise money for charity?
20 Nov 2019

Advice for Teenagers with Marfan Syndrome

We recently received the following plea for support from the anxious parent of an affected teenager
20 Nov 2019
Members only

We're Hiring

The Marfan Trust is looking to hire a Fundraising Manager. Could it be you?
30 Oct 2019

What is Marfan Syndrome?

25% of Marfan syndrome patients are the first one affected in the family.
30 Sep 2019
Members only

Invitation to Marfan Association Supporters

The Marfan Association to close on 30th June 2019
12 Jun 2019

Fatigue and Depression in Marfan Syndrome

A 44 year old man with Marfan syndrome rang for advice as he was falling asleep at his desk
7 May 2019
Members only

Sonalee Laboratory Update

We have been able to upgrade lots of equipment, attend one of the ASHG Conferences and host a number of students
1 May 2019

Trustees Report Spring 2019

Although 2019 finds our Chairman Dr Michael Carr unfortunately indisposed, it is business as usual for the Trust and the Trustees
1 May 2019
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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