All Change for Marfan Trust Team

Along with our office move, the Marfan Trust Team has changed and will continue to evolve further.
20 Nov 2019

Advice for Teenagers with Marfan Syndrome

We recently received the following plea for support from the anxious parent of an affected teenager
20 Nov 2019
Members only

BHF Award Goes to Dr Anne Child

The British Heart Foundation recognised Dr Child’s contribution, in the Heart Heroes Award category
20 Nov 2019

We're Hiring

The Marfan Trust is looking to hire a Fundraising Manager. Could it be you?
30 Oct 2019

What is Marfan Syndrome?

25% of Marfan syndrome patients are the first one affected in the family.
30 Sep 2019
Members only

Invitation to Marfan Association Supporters

The Marfan Association to close on 30th June 2019
12 Jun 2019

Fatigue and Depression in Marfan Syndrome

A 44 year old man with Marfan syndrome rang for advice as he was falling asleep at his desk
7 May 2019
Members only

Sonalee Laboratory Update

We have been able to upgrade lots of equipment, attend one of the ASHG Conferences and host a number of students
1 May 2019

Sonalee Laboratory Wish List 2019

The Sonalee Laboratory is sponsored by the Marfan Trust to undertake research in to Marfan syndrome
1 May 2019

Trustees Report Spring 2019

Although 2019 finds our Chairman Dr Michael Carr unfortunately indisposed, it is business as usual for the Trust and the Trustees
1 May 2019

Helpline Summary

In the past year the helpline has assisted 121 people
1 May 2019

Supporter Achievements - Dan Hyde

​Congratulations to Dan Hyde on the great achievement of being appointed as Director of Music at King’s College, Cambridge.
1 May 2019

9 Truths Only People with Marfan Syndrome Will Understand

Whether you’re newly diagnosed with Marfans or you’ve grown up with the condition, there might be a thing or two here that you can relate to.
20 Feb 2019

Research Director Appeal

Help the Marfan Trust launch its appeal for £300,000 with a bang this #MarfanAwarenessMonth
5 Feb 2019

Going in to Labour with Marfan Syndrome

So you’re pregnant with Marfan syndrome, and you’re tackling all the challenges that brings, that’s even before you’ve tackled the labour!
6 Dec 2018
Members only

What to Expect When You’re Pregnant with Marfan Syndrome

Whether you knew you had Marfan Syndrome before you got pregnant or you've just found out, you may be wondering what you should expect.
5 Dec 2018
Members only

Mince Pies for Marfan

Yummy fundraiser to get your teeth into
27 Nov 2018

Incidence of Pneumothorax in Marfan Syndrome

What is the correct incidence of pneumothorax (free air in the chest cavity that causes the lungs to collapse) in Marfan syndrome?
9 Oct 2018
Members only

Management of Pain in Marfan Syndrome

8 Oct 2018
Members only

AIMS Trial - Results Positive

AIMS trial results show that Irbesartan is well tolerated with very few side effects
10 Sep 2018
Members only
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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