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Information leaflets

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Information leaflets

Local Marfan/Loeys-Dietz
In-Person Support Groups

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and have a conversation.
Click here to find your local group

Related Groups & Organisations

Connect with others having a similar experience and learn more.
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Helpline

Call on + 44 (0)333 011 5256

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Marfan Awareness Month: February 2022

"Once seen never forgotten" Passing frequently unnoticed through GP surgeries and A&Es is a potentially life-threatening condition
1 Feb 2022

Bereavement Advice

This article gathers helpful pieces of advice to form our Guide to Grief
26 Apr 2020
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at [email protected] or by phone on + 44 (0)333 011 5256
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