Skip to title
Skip to main content
We gather anonymised analytics data on website usage unless you opt out.
OK
Opt out
Log in
Donate
About
Resources
Events
News
Membership
Get Involved
Shop
Donate
News
Keep up to date with Marfan syndrome news
Skip to main content
Categories
All Events
Anecdotes and Antidotes
Articles
Auctions
Blog
Conferences
COVID-19
Dr Childs Casebook
Friday Fact
Fundraising Campaigns
Fundraising events
Fundraising News
Grief Advice
Information Leaflets
Job Vacancies
Marfan Awareness Month
Marfan Matters Magazine
Marfan Syndrome
Marfan Trust News
Newsletters
Other events
Other Information
Other Marfan Trust events
Pregnancy
Research News
Supporter Stories
Travel Insurance Information
Useful Information - Other
Vacancies
Webinars
Friday Fact: Preparing for an Emergency
31 May 2024
Heads, Hearts & Minds: Webinar Recording
The psychosocial effects of a diagnosis of aorto-vascular manifestations in Marfan syndrome
30 May 2024
Pectus Matters: Webinar Recording
28 May 2024
Friday Fact: 20th Anniversary of PEARS!
24 May 2024
International Patient Symposium: 31 August
Radisson Blu Edwardian, 9-13 Bloomsbury St London WC1B 3QD
23 May 2024
Dr Child's Casebook: Innate Advantage
Capitalising on the Marfan physique
21 May 2024
Members only
Friday Fact: Joint Pain in Marfan Syndrome
17 May 2024
Friday Fact: Kyphosis v. Scoliosis
What's the difference?
10 May 2024
Friday Fact: Pectus Problems
3 May 2024
Danny's Story
From dedicated smoker to avid runner!
2 May 2024
Dr Child's Casebook: The Science Behind a Smile
Accommodating a high-arched palate
30 Apr 2024
Members only
Friday Fact: PEARS Procedure
What is it?
26 Apr 2024
Wayne's Story
21 years ago
22 Apr 2024
Friday Fact: Sleep Apnoea
What is it?
19 Apr 2024
Karen's Story
A poignant run
15 Apr 2024
Friday Fact: Genotype v. Phenotype
What's the difference?
12 Apr 2024
Dr Child's Casebook: Supplemental Help
Strengthening a weakness
9 Apr 2024
Members only
Brooke's Story
Running in memory of a dear uncle
8 Apr 2024
Lucy's Blog: Part 10
The theme of cancellations & lost referrals has marked Lucy's hospital experience
7 Apr 2024
Friday Fact: Infective Endocarditis
Order your alert card today
5 Apr 2024
Previous
Page 4 of 24
Next
Subscribe
Contact
Privacy Policy
Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at
[email protected]
or by phone on + 44 (0)333 011 5256
Log in
| Powered by
White Fuse