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Events
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Parent Drop-In
Join the conversation!
10 Dec 2024 7:00pm
Joanne's Monthly Drop-In
Pop by for a chat about all things Marfan
26 Nov 2024 7:00pm
Parent Drop-In
Join the conversation!
19 Nov 2024 7:00pm
Joanne's Monthly Drop-In
Pop by for a chat about all things Marfan
22 Oct 2024 7:00pm
Marfan Information Day
12 Oct 2024 9:15am
Parent Drop-In
Join the conversation!
8 Oct 2024 7:00pm
Joanne's Monthly Drop-In
Pop by for a chat about all things Marfan
24 Sep 2024 7:00pm
Parent Drop-In
Join the conversation!
10 Sep 2024 7:00pm
London Patient Symposium
Living Better with Marfan, Loeys-Dietz, & VEDS
31 Aug 2024 9:00am
Parent Drop-In
Join the conversation!
18 Jul 2024 7:00pm
Joanne's Monthly Drop-In
Pop by for a chat about all things Marfan
25 Jun 2024 7:00pm
Parent Drop-In
Join the conversation!
11 Jun 2024 7:00pm
Heads, Hearts & Minds: The Psychosocial Effects of Living with Marfan, Before & After Heart Surgery
From award-winning cardiovascular nurse Rosalie Magboo
22 May 2024 7:00pm
Pectus Matters
Pectus Excavatum: navigating the emotional and medical journey
17 May 2024 12:30pm
Parent Drop-In
Join the conversation!
14 May 2024 7:00pm
Joanne's Monthly Drop-In
Pop by for a chat about all things Marfan
30 Apr 2024 7:00pm
Parents' Drop-In
Join the conversation!
16 Apr 2024 7:00pm
Joanne's Monthly Drop-In
Pop by for a chat about all things Marfan
2 Apr 2024 7:00pm
Parent Drop-In
Join the conversation!
19 Mar 2024 7:00pm
Joanne's Monthly Drop-In
Pop by for a chat about all things Marfan
27 Feb 2024 7:00pm
Parent Drop-In
Join the conversation!
20 Feb 2024 7:00pm
Medical Management of Marfan Syndrome
with Consultant Cardiologist Dr Alex Pitcher
5 Feb 2024 7:00pm
Joanne's Monthly Drop-In
Pop by for a chat about all things Marfan
30 Jan 2024 7:00pm
Parent Drop-In
Join the conversation!
23 Jan 2024 7:00pm
Parent Drop-In
Join the conversation!
12 Dec 2023 7:00pm
Joanne's Monthly Drop-In
Join the conversation!
28 Nov 2023 7:00pm
Parent Drop-In
Join the conversation!
14 Nov 2023 7:00pm
Joanne's Monthly Drop-In
Join the conversation!
31 Oct 2023 7:00pm
Parent Drop-In
Join the conversation!
17 Oct 2023 7:00pm
Marfan Information Day
takes you on the full journey of Marfan syndrome
7 Oct 2023 9:15am
Joanne's Monthly Drop-In
26 Sep 2023 7:00pm
Gastrointestinal Symptoms in Marfan Syndrome
Join our discussion
15 Sep 2023 12:00pm
Parent Drop-In
Join the conversation!
12 Sep 2023 7:00pm
Parent Drop-In
18 Jul 2023 7:00pm
Parent Drop-In
20 Jun 2023 7:00pm
A Lunchtime Drop-In Conversation with the Marfan Trust
30 May 2023 12:00pm
A Lunchtime Drop-In Chat with the Marfan Trust
25 Apr 2023 12:00pm
A Lunchtime Drop-In Chat with the Marfan Trust
4 Apr 2023 12:00pm
A Lunchtime Drop-In Session with the Marfan Trust
28 Feb 2023 12:00pm
The Eye in Marfan Syndrome
A lunchtime discussion with Consultant Ophthalmologist Mr Aman Chandra
13 Nov 2022 12:30pm
Marfan Information Day
Save the Date: Saturday 8 October 2022
8 Oct 2022 9:30am
PEARS Webinar
Getting to the heart of the matter, PEARS pioneer Tal Golesworthy will be discussing his invention
12 May 2022 12:30pm
Marfan Information Day
Purchase your ticket today to avoid disappointment!
9 Oct 2021 9:30am
14/07/21 - Pregnancy and IVF PGD Webinar
Book now and join us for our first ever Webinar
14 Jul 2021 12:30pm
Captain Tom 100
Follow in Captain Sir Tom Moore's footsteps. Conceptualise a challenge, do it 100 times and raise funds for the Marfan Trust
30 Apr 2021 12:00am
Watch This Space - New Events Coming Soon!
31 Dec 2020 10:00am
Silent Auction 2020
Marfan Trust's 2020 Silent Auction is Now Live!
18 Nov 2020 10:00am
Marfan Syndrome Information Day
Saturday, 3 October 2020, 09.15 – 16.20
3 Oct 2020 9:15am
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Marfan Trust, a CIO registered as a charity in England in Wales with charity number 1198847 at: c/o 24 Oakfield Lane, Keston, Kent, BR2 6BY. Contact us at
[email protected]
or by phone on + 44 (0)333 011 5256
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